February 17, 2020
An AGM is a funny affair. It’s one of those things you have to do, and want to do, to open the books and the floor to the general membership once a year. It’s full of motions and bizarre language… Continue Reading…
February 17, 2020
MonthStill??? This is the longest month EVER! Today I am so so so damn tired. The trip to the neurologist takes it out of me. Lacey went to the kennel and has come back tired too. She has been under… Continue Reading…
February 17, 2020
A quick post today as I’m on the road. I’m off to UBC Vancouver to see my neurologist. Only a 5 hour trip down there, an overnight hotel stay and driving back the next day. Travelling is exhausting. My usual… Continue Reading…
February 17, 2020
Happy World MS Day! In honour of this auspicious occasion there will be two posts – first, this one, a serious one, and then later a reporting on our World MS Day event! This Guardian article reports on an article… Continue Reading…
Disability • MS
February 17, 2020
I had an idea for today’s post, continuing the equipment theme, and then another friend with ms gave me another idea that tied the two together. Bathrooms are hard to photograph, but in this you can see three of the… Continue Reading…
Disability • MS
February 17, 2020
It can’t all be big events and videos!Today I show you perhaps the smallest equipment I use. Adaptive cutlery. The first three are obvious, but the last two travel everywhere with me and are attached to cutlery when I eat… Continue Reading…
February 17, 2020
Today Ian and I were invited out to lunch. MS wasn’t invited but it came too. Going to visit friends takes very good friends. First they have to know your schedule. Lunch? Sure! How does 11am work for you! And… Continue Reading…
Disability • Mobility • MS
February 17, 2020
I started with a stick or two and a walker. Within 6 months I added the manual chair, but couldn’t move it by myself. I used my feet on the floor in the house. Then I ordered the big chair,… Continue Reading…
February 17, 2020
I was going to write on something else today, until I saw this story on CBC, all here in Kelowna. MRIs are crucial for lots of MS patients, as they show that type of active lesion I talked about. In… Continue Reading…
February 17, 2020
If you saw me and wondered what the most disabling feature of my MS is, you might say not being able to walk, because I’m in a wheelchair. Wrong!!!! It’s fatigue.Something like 80% of people with MS have fatigue and… Continue Reading…
